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I’m chronicling the changes in my health in regards to a two-year migraine. Both as an aide-mémoire and to help me figure things out as this goes along. Feel free to skip these posts.

Well since my first period started the insane pounding in my head has stopped.  Wait go back a couple of steps.

Two and a half weeks after we removed the Implanon from my arm, my first period turns up. Yesterday. As I half-expected it is heavier and longer than usual, but my body is adjusting from two years without any.  What is of note, is that the insane thumping in my head has not been there when I wake up either yesterday or today.  The pressure has increased.  My head has gone back to feeling like my skull will shatter into a million pieces if I touch one hair. But at least the pounding I wake up with is gone. It comes back as soon as I hear any noise, but I don’t wake up with it. I count this as an improvement. I wonder what will happen after the period ends.

The other fantastic news is that I’ve taught myself to handwrite again. I’ve done this by literally teaching myself to handwrite again. I seemed to have developed a form of, is it dyslexia?  when I want to write a T my fingers form an R or an S some completely random letter. The same with numerals.

I’ve discovered that if I form the letters in a completely different way than how I’ve done them for the last 35 or so years then I can get out the letter I want.  I guess I am remapping the neural pathways.  Do you know how many ways you can actually write an M or a T? Depending on which part of the letter you start, when and where you lift your pen, where you start from to form the next part of the letter.  Sure a lot of my writing now looks like a five-year-olds, but I can write the words I want to write.

To me that counts as a success!

I see the Gynaecologist to discuss hormones and migraines on 14 February. Next week.

Its been one of those weeks ….

My specialist gave up on me, I’m allergic to the water supply, family dramas galore and in the tradition of the best songs my best friend’s dog died.

The sad news first: Tuesday morning I received a txt from Miss A. Her beloved Tane had just died.  She was gambolling around the yard then just laid down and died, they think it was a stroke. So a good way to go – she was happy and well-loved.  Miss A is of course as heart-broken as any of us would be.  Tane was the canine that turned a life-long cat person into a dog-person; truly an exceptional personality! And one that will be sorely missed 🙁

On Monday:  We saw my world leading consulting neurologist on Monday to report that the Parnate was a failure. He didn’t believe the side-effects I had while on the drug.  “It’s supposed to be an anti-depressant; it’s not supposed to make you depressed!” and then he prescribed one last course of drugs. A 3-5 day lignocaine infusion.

Unfortunately in Australia, this infusion is only legal for emergency use.  So to be eligible for this I would go into Canberra intentionally place myself to I could get the worse possible migraine triggering, then call an ambulance then convince Canberra’s largest hospital (with chronic bed shortage) that although I have self managed my migraine pain with a cool quiet environment for the last two years, I really now needed to be in a noisy light filled hospital for 3-5 so my specialist can administer this drug.

This drug which has been trialled once in Australia and only gave lasting relief to 4 out of 19 patients. And you want me to talk my way in to an elective procedure via an emergency route. At the busiest time of year. In the busiest hospital in the region.

The specialist said it was up to me to get myself into that hospital bed and to call him in when I was there and there was nothing further he could do for me. This was it. There was no other option. He was out of options. There is nothing further can do for me.  He then walked past both of us out into the waiting room and called the next patients into the office.

To say mum and I were a little stunned was an understatement.  We were shocked.  Shocked and sickened ; at the lack of ethics and we felt cast off; rudderless.

It’s now Friday.  We’ve given it a lot of thought and the one area that Dr Andrews didn’t know anything about was the Implanon in my arm.  A few times I think the different drugs he gave me overrode the implant and I wonder if the implant is playing a role in all of this because there is a link between women 35-45 and migraine and hormones. Dr Andrews knew nothing about artificial hormone regulators or how they affected any of the drugs he put me on.  So we talked all of this through with my GP this week and he gave me the number of a gynecologist in Canberra who specialists in hormone research.  Some gynecologists later (most are only interested in hormonal issues related to fertility it seems and I’m not interested in getting pregnant as a way to relieve the migraine thank you very much) I have an appointment with one in February.

In the meantime I’m thinking I should just get the thing removed and see how things go for the next month anyway.  If it makes no difference I can always get it put back in.

Next issue: Icky.  I’ve been having intermittent without warning explosive diarrhea for a few months.  Lets just say that adult diapers will never be on my fantasy list ever! Euwwwww ….  Anyway it turns out there’s a bug in the local water supply that the locals are used to but I’m not.  So it’s some heavy-duty antibiotics and then bottled water or gin & tonics for at least the next month, preferably two.  The GP recommends the gin & tonics, costs the same as the bottled water but makes Christmas with the relatives easier to bear!  I like my GP 🙂

Which bring us to the last issue: Family.  This one has taken most of the mental energy and time outside of the bathroom this week.  I’ve also been doing a fair amount of Warcraft. Thank you to Stephen for explaining to me years ago how therapeutic pixel-killing really is! Anyway, the house my sister was renting was sold and Kiddo and the kids have to be out by Sunday.  This is unfortunately not the time of year to be looking for a new house to rent, especially in her area.  However as Master 5 is enrolled in the local school to start in February she really wanted to stay local, so finally she found a place in Thursday.

In between trips to the bathroom and the GPs I gave Kiddo lots of packing advice and encouragement and helped mediate family dynamics.  Who knew all those trainer  mediation skills and techniques would work on family members ?!

So this morning mum and I made a heap of sandwiches and a big thermos of tea and mum;s driving that over and bringing the grandkids back here.  Dad’s turning up over there and helping Kiddo and her partner do the actual move. I’m getting dressed shortly, baking a cake for the kids and hiding all the Christmas presents before Master 5 sticks his goddamn nose where it don’t belong.  Hmmm better do that bit first.

So yes – migraine city for me for the weekend, but this way Dad Kiddo and her partner can her stuff moved to the new place without the kids under foot.  And over here, Master 3 and Master 5 can play outside with Grandma while I continue to wonder why we do not spend more time decorating the bathroom.  Surely we need a trompe l’oeil in there.

 

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